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Dupuytren Research Group
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KnowDup and Dupuytren Awareness Day

Dupuytren disease cripples millions of hands. We need a Dupuytren cure. There’s an obstacle. Most people have never heard of Dupuytren disease. Most government officials have never heard of Dupuytren disease. There’s no US government funding assigned specifically for Dupuytren disease research.

Please join me in an effort to raise awareness about Dupuytren disease. Here’s how:

I’m in Florida. I contacted my elected Florida government officials. They are submitting a resolution to make April first Dupuytren Disease Awareness Day in Florida. They’re happy to help because this disease crosses all party lines. I’ve made it easy for you to do the same for your state government officials.

We’ll be using Democracy.io, a free secure site which makes it simple to email your state government officials. The link below will open Democracy.io in a new tab. You’ll go back and forth between this tab and the Democracy.io tab to copy & paste two items from this page into the Democracy.io form. Here are the instructions to walk you through the process. They’re detailed, but you’ll see it’s pretty simple. Should take about two minutes.

Ready? Let’s go!

  1. Go to Democracy.io at This Link
  2. On Democracy.io:
    • Fill in your addressClick “Submit”. Example
    • On the next page, choose your senators and representative.  Example
    • Click “Write to them!”
  3. Come back to this tab.
    • Click inside this box:
    • Copy the highlighted text (CTRL-C or CMD-C).
  4. Go back to the Democracy.io tab (the tab, not the blue button on this page).
    • Click in the middle of the text box under “Subject”.
    • Paste the text (CTRL-V or CMD-V). Example
  5. Come back to this tab.
    •  Click inside this box:

      Copy the text (CTRL-C or CMD-C).
  6. Go back to the Democracy.io tab.
    • Click in the middle of the text box under “Subject”.
    • Paste the text (CTRL-V or CMD-V). Example
    • You can personalize your letter with details about how Dupuytren disease has affected the lives of you, your family and your friends.
    • Fill out the rest of the form. Choose “Health” or “Health Care” as Topics.
    • Click “Send!”

I know what you’re thinking: “Wait a minute. April first? That’s April Fool’s day!” That’s right! We’re flipping it. Dupuytren’s disease has fooled too many people for too long.
Don’t you think it’s time for us to turn things around?

If enough states pick this up, we can push for a national Dupuytren Disease Awareness Day. This will raise awareness and help create government funding for Dupuytren research – one step closer to helping those suffering from this crippling condition.

It’s simple. Five minutes, tops. Make a difference for yourself and for your family. Spread the word, because everyone needs to know about Dupuytren disease.

Thanks!

Charles Eaton MD
Executive Director, Dupuytren Research Group / Dupuytren Foundation

Update: This resolution was accepted in the Florida House and Senate on March 27, 2017. Dr. Eaton attended the resolution announcement in the Florida House and Senate. Resolution Document

FL Representative David Silvers and Dr. Eaton

FL Senator Jeff Clemens and Dr. Eaton