Pain with Dupuytren disease receives little attention. This is a hot button topic. Many Dupuytren patients feel marginalized when they hear a doctor say that Dupuytren disease doesn’t hurt – because theirs does. Dupuytren disease can be very painful – but the majority of Dupuytren patients have no pain, and the reason for this is […]
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My first Dupuytren palm nodule. What will to happen to me? Most Dupuytren disease starts as a nodule. Some nodules go away without any treatment. Some nodules develop minor cords and then seem to stop. Some nodules are the first sign of severe Dupuytren disease. Which is it going to be? Without a biomarker, we can […]
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If a hand progresses from early Dupuytren disease (nodules, dimples, cords with no limitation of motion) to Dupuytren contracture, treatment should be considered. The best compromise between the ordeal of a procedure and the best long term outcome is to treat either when the finger is either awkwardly bent or if the bend of one joint […]
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The International Dupuytren Data Bank (IDDB) will focus on Dupuytren biomarkers Why are biomarkers important for Dupuytren disease? Dupuytren contracture is an effect, not a cause. Think of fever. Fever is an effect of infection, drug reaction, or something else. Just treating the effect – the fever – doesn’t cure the cause. You have to find […]
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It has been a great year – thanks to you! We’ve launched the International Dupuytren Data Bank (IDDB) – research for a cure, to be the largest Dupuytren study in history. Now that the IDDB is underway, your support is more important than ever. Please consider increasing your year-end gift to the Dupuytren Foundation this year […]
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Today is the day. The International Dupuytren Data Bank is now live. Independent. Crowdsourced. Massive. Free. The biggest Dupuytren research study ever. Enroll now at DupStudy.com Tell everyone with Dupuytren disease to enroll. DupStudy.com Together, we will find a cure.
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It’s important to understand the difference between Dupuytren disease (any Dupuytren like changes in the hand – with or without contracture) and Dupuytren contracture (a bent finger due to Dupuytren like changes). An unsolved issue is variability of disease. It is not known what percent of people with early Dupuytren changes (a lump, a cord without contracture) will […]
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The best way to raise awareness of Dupuytren disease is to show people what it looks like. Here’s your chance to represent the Dupuytren community! http://www.eurordis.org/photo-contest
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The three traditional treatments for severe recurrent Dupuytren contracture are PIP joint fusion, dermofasciectomy and amputation. These have been reviewed here. The list of alternative approaches is growing, particularly for the most difficult problem of PIP joint recontracture. The problem is that over time, the tendons and ligaments of a bent PIP joint change and […]
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Dupuytren disease is a challenge. So is climbing straight up the side of a tall mountain with your bare hands. Today Will Winford, a 27 year old rock climber with Dupuytren disease, begins his conquest of both – climbing the 3000 vertical feet of El Capitán and using this to help raise awareness of Dupuytren disease. Find […]
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