DUPUYTREN LITERATURE: QUESTIONNAIRES AND SURVEY FORMS

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Medline Title Search (Dupuytren + (Questionnaire or Survey or “Self-reported”)

Selected Publications
Surveys of Patients

• • Ball C, Pratt AL, Nanchahal J (2013) Optimal functional outcome measures for assessing treatment for Dupuytren’s disease: a systematic review and recommendations for future practice . BMC Musculoskelet Disord 14, 131. (PDF)
  • Beaudreuil J, Allard A, Zerkak D, Gerber RA, Cappelleri JC, Quintero N, Lasbleiz S, Bernabe B, Orcel P, Bardin T. (2011). “Unite Rhumatologique Des Affections de La Main (URAM) Scale: Development and Validation of a Tool to Assess Dupuytren’s Disease-Specific Disability.” Arthritis Care Res (Hoboken) 63 (10): 1448–55. (PDF)
  • Bernabé Brigitte, Lasbleiz Sandra, Gerber Robert a, Cappelleri Joseph C, Yelnik Alain, Orcel Philippe, Bardin Thomas, Beaudreuil Johann. (2014). “URAM Scale for Functional Assessment in Dupuytren’s Disease: A Comparative Study of Its Properties.” Joint, Bone, Spine : Revue Du Rhumatisme, February. Elsevier Masson SAS, 53–56. (PDF)
  • Bhutta Mahmood F, Hobson Lindsey, Lambie Jane, Scaman Elizabeth SH, Burton Martin J, Giele Henk, Jamieson Sarra E, Furniss Dominic. (2013). “Alternative Recruitment Strategies Influence Saliva Sample Return Rates in Community-Based Genetic Association Studies.” Annals of Human Genetics 77 (3): 244–50. (PDF)
  • Budd HR, Larson D, Chojnowski A, Shepstone L. (2011). “The QuickDASH Score: A Patient-Reported Outcome Measure for Dupuytren’s Surgery.” J Hand Ther 24 (1): 15–20; quiz 21. http://www.ncbi.nlm.nih.gov/pubmed/21106346. (PDF)
  • Das De S, Vranceanu AM, Ring DC (2013) Contribution of kinesophobia and catastrophic thinking to upper-extremity-specific disability. J Bone Joint Surg Am 95, 76–81. 
  • Degreef I, Vererfve P-B, De Smet L (2009) Effect of severity of Dupuytren contracture on disability. Scandinavian journal of plastic and reconstructive surgery and hand surgery 43, 41–2. (PDF)
  • Degreef Ilse, Steeno Pieter, De Smet Luc. (2008). “A Survey of Clinical Manifestations and Risk Factors in Women with Dupuytren’s Disease.” Acta Orthopaedica Belgica 74 (4): 456–60. (PDF)
  • Dias JJ, Braybrooke J. (2006). “Dupuytren’s Contracture: An Audit of the Outcomes of Surgery.” Journal of Hand Surgery (Edinburgh, Scotland) 31 (5): 514–21. (PDF)
  • Dibenedetti DB, Nguyen D, Zografos L, Ziemiecki R, Zhou X. (2011). “Prevalence, Incidence, and Treatments of Dupuytren’s Disease in the United States: Results from a Population-Based Study.” Hand (N Y) 6 (2): 149–58. (PDF)
  • Engstrand C, Borén L, Liedberg GM (2009) Evaluation of activity limitation and digital extension in Dupuytren’s contracture three months after fasciectomy and hand therapy interventions. Journal of hand therapy : official journal of the American Society of Hand Therapists 22, 21–6; quiz 27. (PDF)
  • Engstrand C, Krevers B, Nylander G, Kvist J (2014) Hand function and quality of life before and after fasciectomy for Dupuytren contracture. The Journal of hand surgery 39, 1333–1343.e2. (PDF)
  • Engstrand C, Kvist J, Krevers B (2016) Patients’ perspective on surgical intervention for Dupuytren’s disease – experiences, expectations and appraisal of results. Disability and Rehabilitation 8288, 1–12. (PDF)
  • Forget NJ, Jerosch-Herold C, Shepstone L, Higgins J (2014) Psychometric evaluation of the Disabilities of the Arm, Shoulder and Hand (DASH) with Dupuytren’s contracture: validity evidence using Rasch modeling. BMC musculoskeletal disorders 15, 361. (PDF)
  • Hageman Michiel GJS, Anderson Jade, Blok Robin, Bossen Jeroen KJ, Ring David. (2014). “Internet Self-Diagnosis in Hand Surgery.” Hand. http://link.springer.com/10.1007/s11552-014-9707-x. (PDF)
  • Jerosch-Herold C, Shepstone L, Chojnowski A, Larson D (2011) Severity of contracture and self-reported disability in patients with Dupuytren’s contracture referred for surgery . J Hand Ther 24, 6–10. (PDF)
  • Jerosch-Herold Christina, Shepstone Lee, Vaughan Susan, Barrett Bett, Larson Debbie, Chojnowski Adrian. (2011). “A Questionnaire-Based Survey of Participants’ Decisions Regarding Recruitment and Retention in a Randomised Controlled Trial – Lessons Learnt from the SCoRD Trial.” Contemporary Clinical Trials 32 (3). Elsevier Inc.: 363–68. http://www.ncbi.nlm.nih.gov/pubmed/21300178. (PDF)
  • Knobloch Karsten, Kuehn Marie, Vogt Peter M. (2010). “Application of the German Standardized Translation of the Michigan Hand Outcomes Questionnaire (MHQ) for Patient-Reported Outcome Assessment Following Selective Fasciectomy in Dupuytren’s Disease,” 1–16. (PDF)
  • Li Yu Kit, Alolabi Noor, Kaur Manraj Nirmal, Thoma Achilleas. (2015). “A Systematic Review of Utilities in Hand Surgery Literature.” The Journal of Hand Surgery. Elsevier Inc, 1–9. (PDF)
  • McMillan Catherine R, Binhammer Paul a. (2009). “Which Outcome Measure Is the Best? Evaluating Responsiveness of the Disabilities of the Arm, Shoulder, and Hand Questionnaire, the Michigan Hand Questionnaire and the Patient-Specific Functional Scale Following Hand and Wrist Surgery.” Hand (New York, N.Y.) 4 (3): 311–18. (PDF)
  • Mohan A, Vadher J, Ismail H, Warwick D. The Southampton Dupuytren’s Scoring Scheme. J Plast Surg Hand Surg. 2014;48(1):28–33. (PDF)
  • Morelli Ilaria, Fraschini Gianfranco, Banfi Arianna E. (2017). “Dupuytren’s Disease: Predicting Factors and Associated Conditions. A Single Center Questionnaire-Based Case-Control Study.” The Archives of Bone and Joint Surgery 5 (6): 384–93. (PDF)
  • Myers Helen L, Thomas Elaine, Hay Elaine M, Dziedzic Krysia S. (2011). “Hand Assessment in Older Adults with Musculoskeletal Hand Problems: A Reliability Study.” BMC Musculoskeletal Disorders 12 (1). BioMed Central Ltd: 3. (PDF)
  • Packham T. (2011). “ Clinical Commentary in Response to: Severity of Contracture and Self-Reported Disability in Patients with Dupuytren’s Contracture Referred for Surgery .” J Hand Ther 24 (1): 4–12. (PDF)
  • Pearl RA, Belcher HJ. (2013). “Three-Dimensional Assessment of Hand Outcome.” Ann R Coll Surg Engl 95 (6): 421–26. (PDF)
  • Rodrigues J, Zhang W, Scammell B et al. (2016) Validity of the Disabilities of the Arm, Shoulder and Hand patient-reported outcome measure (DASH) and the Quickdash when used in Dupuytren’s disease. The Journal of hand surgery, European volume 41, 589–99. (PDF)
  • Rodrigues JN, Zhang W, Scammell BE, Davis TRC. What patients want from the treatment of Dupuytren’s disease — is the Unite Rhumatologique des Affections de la Main (URAM) scale relevant? J Hand Surg Eur Vol. 2014;21;1-5. (PDF)
  • Thoma A, Kaur M, Ignacy TA, Levis C, Martin S, Duku E, et al. Health Related Quality of Life in Patients undergoing Palmar Fasciectomy for Dupuytren’s Disease. Plastic and reconstructive surgery. 2014;. (PDF)
  • Thoma A, Kaur MN, Ignacy TA et al. (2014) Psychometric properties of health-related quality of life instruments in patients undergoing palmar fasciectomy for dupuytren’s disease: a prospective study. Hand (New York, N.Y.) 9, 166–74. (PDF)
  • Trybus Marek, Bednarek Marcin, Lorkowski Jacek, Teul Iwona. (2011). “Psychologic Aspects of Dupuytren’s Disease: A New Scale of Subjective Well-Being of Patients.” Annales Academiae Medicae Stetinensis 57 (1): 31–7; discussion 37. (PDF)
  • van de Ven-Stevens Lucelle AW, Graff Maud JL, Peters Marlijn AM, van der Linde Harmen, Geurts Alexander CH. (2015). “Construct Validity of the Canadian Occupational Performance Measure in Participants with Tendon Injury and Dupuytren Disease.” Physical Therapy 95 (5): 750–57. (PDF)
  • Van Vliet MM, Maradey JA, Homa KA, Kerrigan CL. (2013). “ The Usefulness of Patient-Reported Measures for Clinical Practice .” Plast Reconstr Surg 132 (1): 12–105. (PDF)
  • Warwick D, Worsley P, Graham D, Rodrigues JN, Zhang W, Scammell BE, Davis TRC, Akhavani M, Muir L. (2015). “Re: Akhavani MA, McMurtrie A, Webb M, Muir L. A Review of the Classification of Dupuytren’s Disease. J Hand Surg Eur. 2015, 40: 155-65 and Rodrigues JN, Zhang W, Scammell BE, Davis TRC. What Patients Want from the Treatment of Dupuytren’s Disease – Is the…” The Journal of Hand Surgery, European Volume 40 (5): 544–45. (PDF)
  • Wehrli Martina, Hensler Stefanie, Schindele Stephan, Herren Daniel B, Marks Miriam. (2015). “Measurement Properties of the Brief Michigan Hand Outcomes Questionnaire in Patients With Dupuytren Contracture.” Journal of Hand Surgery 41 (9). Elsevier Inc: 896–902. (PDF)

Surveys of Surgeons

• Dias J, Bainbridge C, Leclercq C, Gerber RA, Guerin D, Cappelleri JC, Szczypa PP, Dahlin LB. (2013). “Surgical Management of Dupuytren’s Contracture in Europe: Regional Analysis of a Surgeon Survey and Patient Chart Review.” International Journal of Clinical Practice.(PDF)
• Dahlin LB, Bainbridge C, Leclercq C, Gerber RA, Guerin D, Cappelleri JC, Szczypa PP, Dias J. (2013). “Dupuytren’s Disease Presentation, Referral Pathways and Resource Utilisation in Europe: Regional Analysis of a Surgeon Survey and Patient Chart Review.” International Journal of Clinical Practice. (PDF)
• McMillan Catherine, Yeung Celine, Binhammer Paul. (2017). “Variation in Treatment Recommendations for Dupuytren Disease.” The Journal of Hand Surgery, no. Dd. Elsevier Inc. http://linkinghub.elsevier.com/retrieve/pii/S0363502316311418. (PDF)