DUPUYTREN LITERATURE: QUALITY OF LIFE

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Medline Title Search (Dupuytren + (Subjective or qualitative or PROM or “patient reported” or disability or “quality of life” or QOL))

Much work has gone into defining the physical severity of Dupuytren contracture, which has been difficult to concisely describe or score. In addition, the real impact of disease goes well past angles and measurements of individual joints. Subjective, qualitative, self-reported descriptions of the effect of Dupuytren disease on function, appearance, social and psychological impact must also be taken into account.

Selected Publications

• Chen NC, Shauver MJ, Chung KC. (2011). “ Cost-Effectiveness of Open Partial Fasciectomy, Needle Aponeurotomy, and Collagenase Injection for Dupuytren Contracture .” J Hand Surg Am 36 (11): 1826–1834 e32. (PDF)
• Das De S, Vranceanu AM, Ring DC. (2013). “Contribution of Kinesophobia and Catastrophic Thinking to Upper-Extremity-Specific Disability.” J Bone Joint Surg Am 95 (1): 76–81. (PDF)
• Degreef I, De Smet L. (2009). “Dupuytren’s Disease : A Predominant Reason for Elective Finger Amputation in Adults.” Acta Chirurgica Belgica 109 (4): 494–97. (PDF)
• Degreef I, Vererfve PB, De Smet L, Surgery Orthopaedic, Pellenberg UZ. (2009). “Effect of Severity of Dupuytren Contracture on Disability.” Scand J Plast Reconstr Surg Hand Surg 43 (1): 41–42. (PDF)
• Engstrand C, Borén L, Liedberg GM. Evaluation of Activity Limitation and Digital Extension in Dupuytren’s Contracture Three Months after Fasciectomy and Hand Therapy Interventions. J Hand Ther. 2008/11/07 ed. 2009;22(1):21–7. (PDF)
• Engstrand Christina, Krevers Barbro, Kvist Joanna. (2014). “Factors Affecting Functional Recovery after Surgery and Hand Therapy in Patients with Dupuytren’s Disease.” Journal of Hand Therapy. Elsevier Inc., 1–5. (PDF)
• Engstrand Christina, Krevers Barbro, Nylander Göran, Kvist Joanna. (2014). “Hand Function and Quality of Life before and after Fasciectomy for Dupuytren Contracture.” The Journal of Hand Surgery 39 (7). Elsevier Inc: 1333–1343.e2. (PDF)
• Engstrand Christina, Kvist Joanna, Krevers Barbro. (2016). “Patients’ Perspective on Surgical Intervention for Dupuytren’s Disease – Experiences, Expectations and Appraisal of Results.” Disability and Rehabilitation 8288 (February): 1–12. (PDF)
• Jerosch-Herold C, Shepstone L, Chojnowski A, Larson D. (2011). “ Severity of Contracture and Self-Reported Disability in Patients with Dupuytren’s Contracture Referred for Surgery .” J Hand Ther 24 (1): 6–10; quiz 11. http://www.ncbi.nlm.nih.gov/pubmed/20952160. (PDF)
• Kan Hester J, de Bekker-Grob Esther W, van Marion Eva S, van Oijen Guido W, van Nieuwenhoven Christianne A, Zhou Chao, Hovius Steven ER, Selles Ruud W, Best Matthew J, Mir Haaris S. (2016). “Patients’ Preferences for Treatment for Dupuytren’s Disease: A Discrete Choice Experiment.” Plastic and Reconstructive Surgery 137 (1): 114–21. (PDF)
• McMillan Catherine, Yeung Celine, Binhammer Paul. (2017). “Variation in Treatment Recommendations for Dupuytren Disease.” The Journal of Hand Surgery, no. Dd. Elsevier Inc. http://linkinghub.elsevier.com/retrieve/pii/S0363502316311418. (PDF)
• Packham T. (2011). “ Clinical Commentary in Response to: Severity of Contracture and Self-Reported Disability in Patients with Dupuytren’s Contracture Referred for Surgery .” J Hand Ther 24 (1): 4–12. (PDF)
• Pratt AL, Byrne G. (2009). “ The Lived Experience of Dupuytren’s Disease of the Hand .” J Clin Nurs 18 (12): 802–1793. (PDF)
• Raymond Antony, Parry Michael, Amirfeyz Rouin. (2015). “Critical Angles of Deformity in Dupuytren’s Contracture of the Little and Ring Fingers.” Hand Surgery 20 (2): 290–97. (PDF)
• Rodrigues JN, Zhang W, Scammell BE, Davis TRC. What patients want from the treatment of Dupuytren’s disease — is the Unite Rhumatologique des Affections de la Main (URAM) scale relevant? J Hand Surg Eur Vol. 2014;21;1-5. (PDF)
• Thoma Achilleas, Kaur Manraj Nirmal, Ignacy Teegan Ali, Levis Carolyn, Martin Stuart, Duku Eric, Haines Ted. (2014). “Health-Related Quality of Life in Patients Undergoing Palmar Fasciectomy for Dupuytren’s Disease.” Plastic and Reconstructive Surgery 133 (6): 1411–19. (PDF)
• Trybus Marek, Bednarek Marcin, Lorkowski Jacek, Teul Iwona. (2011). “Psychologic Aspects of Dupuytren’s Disease: A New Scale of Subjective Well-Being of Patients.” Annales Academiae Medicae Stetinensis 57 (1): 31–7; discussion 37. (PDF)
• Wilburn J, McKenna SP, Perry-Hinsley D, Bayat A. (2013). “The Impact of Dupuytren Disease on Patient Activity and Quality of Life.” J Hand Surg Am 38 (6). (PDF)
• Zhou Chao, Hovius Steven ER, Slijper Harm P, Zuidam Michiel J, Smit Xander, Feitz Reinier, Selles Ruud W. (2016). “Predictors of Patient Satisfaction with Hand Function after Fasciectomy for Dupuytren’s Contracture.” Plastic and Reconstructive Surgery 138 (3): 649–55. (PDF)
• Zyluk A, Jagielski W. (2007). “The Effect of the Severity of the Dupuytren’s Contracture on the Function of the Hand before and after Surgery.” The Journal of Hand Surgery, European Volume 32 (3): 326–29. http://www.ncbi.nlm.nih.gov/pubmed/17335947. (PDF)