2020 IDDB Progress and Findings
2020 IDDB Progress and Findings The International Dupuytren Data Bank is now in its fifth year with 4465 enrollees from 48 countries. There’s now enough data to begin looking for trends and new insights. We’ve begun collecting blood samples from select enrollees for the Dupuytren Blood Biomarker Pilot Study. Blood sample collection is on hold until […]
2020: The year of solving the puzzle!
I’m optimistic 2020 will be the year of progress solving the Dupuytren puzzle. Dupuytren seems at times a jigsaw puzzle with too many pieces. Pieces from other puzzles. Pieces that look as though they should fit, but don’t. Pieces that belong in one location, but seem to fit in many different locations. One strategy to […]
Dupuytren Hand Therapy Podcast 1/2
Susan Weiss OTR/L CHT just released the first of a 2-part audio podcast interview with Dupuytren Research Group’s Dr. Charles Eaton, discussing Dupuytren disease from a hand therapy perspective. Very interesting, can’t wait for the second installment![ale_button url=”https://podcasts.apple.com/us/podcast/a-future-without-dupuytren-disease-tell-me-more/id1466378594?i=1000457220972″ style=”light-blue” size=”small” type=”round” target=”_self”] Listen to Pocast [/ale_button]
Dupuytren Outreach Milestone
Dupuytren Research Group Outreach and Awareness programs have reached a new milestone: 1000 subscribers to Dupuytren.tv, the Dupuytren Research Group video podcast / YouTube channel. It’s actually a big deal: we don’t feature cats or dogs, cute babies, social media influencers, hot spokesmodels, “one weird trick” clickbait, video game reviews, celebrities behaving badly, or other […]
It’s Dupuytren’s Birthday!
Happy Birthday, Dupuytren! It may not seem that long ago, but Guillaume Dupuytren was born just 242 years ago today on Oct. 5, 1777. Dupuytren disease goes by his name because of the lecture he gave and the surgery he performed for this condition at Hôpital-Dieu in Paris on the 5th of December 1831, just […]
Dupuytren and Rare Disease Research
Is Dupuytren disease common or rare? I recently attended the Rare Drug Development Symposium in Philadelphia. Why? Is Dupuytren really a rare disease? Yes and no. Mild Dupuytren is common but very severe Dupuytren is rare – in the same way that cats are common but chimeric cats with crazy colors are rare. What does […]
Ten Things to Know About Dupuytren
There are many reasons to know about Dupuytren disease. Ten of them are on your hands. When Healthgrades.com wanted to know more about Dupuytren disease, they reached out to the Dupuytren Research Group. See the Healthgrades Dupuytren review Dupuytren’s Contracture: 10 Things Doctors Want You to Know featuring Dupuytren specialists on the Dupuytren Research Group […]
One Dup, Two Dup, Red Dup, Blue Dup
So much is known about Dupuytren; much more needs to be known. Dupuytren probably isn’t one single diagnosis or one single disease. It’s the end result of overlapping causes. It’s a late effect of many possible causes, the same way similar looking scars can be the late effects of different injuries – cuts, burns, blunt trauma and […]
Dupuytren and nerve problems?
Does Dupuytren cause nerve problems? A common topic of discussion on Dupuytren forums such The Dupuytren’s Disease Support Group [ale_button url=”https://www.dupuytrensdiseasesupportgroup.com/” style=”light-blue” size=”small” type=”round” target=”_blank”] DDSG [/ale_button] is whether or not Dupuytren causes numbness and tingling in the hands and arms. As with everything Dupuytren related, the answer is …it depends. A few small studies […]
Happy Thanksgiving from the Dupuytren Foundation!
Turkey Day Update! Much has happened since the last Dupuytren Foundation report in July. The International Dupuytren Data Bank (IDDB) averages 100 new enrollees each month. We’re continuing to work out the complicated details of blood testing. If you haven’t enrolled yet, now is the time: http://DupStudy.com. Our international research committee continues to grow. So does […]
