IDDB

Dupuytren and Rare Disease Research
On: Jul 1, 2019
By: Charles Eaton

Is Dupuytren disease common or rare? I recently attended the Rare Drug Development Symposium in Philadelphia. Why? Is Dupuytren really a rare disease? Yes and no. Mild Dupuytren is common but very severe Dupuytren is rare – in the same way that cats are common but chimeric cats with crazy colors are rare. What does […]

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Ten Things to Know About Dupuytren
On: Mar 26, 2019
By: Charles Eaton

There are many reasons to know about Dupuytren disease. Ten of them are on your hands. When Healthgrades.com wanted to know more about Dupuytren disease, they reached out to the Dupuytren Research Group. See the Healthgrades Dupuytren review Dupuytren’s Contracture: 10 Things Doctors Want You to Know featuring Dupuytren specialists on the Dupuytren Research Group […]

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One Dup, Two Dup, Red Dup, Blue Dup
On: May 17, 2018
By: Charles Eaton

So much is known about Dupuytren; much more needs to be known. Dupuytren probably isn’t one single diagnosis or one single disease. It’s the end result of overlapping causes. It’s a late effect of many possible causes, the same way similar looking scars can be the late effects of different injuries – cuts, burns, blunt trauma and […]

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Dupuytren and nerve problems?

Does Dupuytren cause nerve problems? A common topic of discussion on Dupuytren forums such The Dupuytren’s Disease Support Group is whether or not Dupuytren causes numbness and tingling in the hands and arms. As with everything Dupuytren related, the answer is …it depends. A few small studies suggesting that local tenderness in Dupuytren cords, nodules, […]

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Happy Thanksgiving from the Dupuytren Foundation!

Turkey Day Update! Much has happened since the last Dupuytren Foundation report in July. The International Dupuytren Data Bank (IDDB) averages 100 new enrollees each month. We’re continuing to work out the complicated details of blood testing. If you haven’t enrolled yet, now is the time: http://DupStudy.com. Our international research committee continues to grow. So does […]

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Dupuytren’s Disease Support Group Q&A
On: Sep 2, 2016
By: Charles Eaton

Dupuytren disease research questions and answers. Dupuytren advocacy is challenging. One challenge is that many people have never heard the words Dupuytren, or Ledderhose, or Peyronie, including many who have these problems. A larger challenge is that no one knows the root biology of Dupuytren/Ledderhose/Peyronie disease – how it starts, or how to make it […]

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Dupuytren Foundation 2016 Mid-Year Report
On: Aug 30, 2016
By: Charles Eaton

Dupuytren Foundation 2016 Mid-Year Report 2016 has already exceeded expectations for the Dupuytren Foundation. Here are some of the highlights. Progress on International Dupuytren Data Bank Research The International Dupuytren Data Bank (IDDB) launched in November 2015. The goal of the IDDB is a cure for Dupuytren disease. This research has been made possible through your support. Project […]

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Biomarkers in Dupuytren Disease
IDDB, biomarkers and big data to cure Dupuytren disease
On: Dec 9, 2015
By: Charles Eaton

The International Dupuytren Data Bank (IDDB) will focus on Dupuytren biomarkers Why are biomarkers important for Dupuytren disease? Dupuytren contracture is an effect, not a cause. Think of fever. Fever is an effect of infection, drug reaction, or something else. Just treating the effect – the fever – doesn’t cure the cause. ‌‌ You have to find […]

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Cure Dupuytren Disease
IDDB Research for a Cure: Enrollment is Open

Today is the day. The International Dupuytren Data Bank is now live. Independent. Crowdsourced. Massive. Free. The biggest Dupuytren research study ever. Enroll now at DupStudy.com Tell everyone with Dupuytren disease to enroll. DupStudy.com Together, we will find a cure.

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