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Dupuytren and Rare Disease Research
Is Dupuytren disease common or rare? I recently attended the Rare Drug Development Symposium in Philadelphia. Why? Is Dupuytren really a rare disease? Yes and no. Mild Dupuytren is common but very severe Dupuytren is rare – in the same way that cats are common but chimeric cats with crazy
Ten Things to Know About Dupuytren
There are many reasons to know about Dupuytren disease. Ten of them are on your hands. When Healthgrades.com wanted to know more about Dupuytren disease, they reached out to the Dupuytren Research Group. See the Healthgrades Dupuytren review Dupuytren’s Contracture: 10 Things Doctors Want You to Know featuring Dupuytren specialists
Dupuytren research is rare disease research
Happy Rare Disease Day! Did you know that according to the US Government, Dupuytren is a rare disease? If you count everyone with any degree of Dupuytren disease, it’s fairly common. In the US alone, the number of Dupuytren sufferers projects to about 10 million people. But, if you ask the
Happy Valentine’s Day!
Happy Valentine’s Day from the Dupuytren Research Group. We care about your hands. Your Hands Are Your Life.
Grants.gov: $0 for Dupuytren Research
Currently, there are no government grants for Dupuytren research. See for yourself: [ale_button url=”https://www.grants.gov/web/grants/search-grants.html?keywords=Dupuytren” style=”light-blue” size=”small” type=”round” target=”_blank”]Search Grants.gov for Dupuytren Research Funding[/ale_button] We’re working to change this. You should, too. If you have an idea you want to work on to help jumpstart government funding for Dupuytren Research, let
Shine a light on Dupuytren?
Dupuytren biology has a lot of overlap with wound healing biology. One description of Dupuytren is that it’s like the body is trying to heal a wound that isn’t there. I used to worry that any treatment described as “promoting” or “accelerating” wound healing might be exactly the wrong thing
Dupuytren: restoring balance vs. winning the war
There were a number of responses to the last blog post. Annie Stratton wrote something so insightful I’ve included it with permission at the end of this post. The last post used the analogy of war, the war on Dupuytren. That seemed reasonable for several reasons – the importance of strategy
Strategies and Tactics of Dupuytren Treatment: Measurement
This is the introduction to an upcoming series of discussions on the science behind new potential preventive Dupuytren treatments. The guiding mission of the Dupuytren Research Group is to do what needs to be done to prevent and stop Dupuytren. Our goal is the conquest of Dupuytren. Dupuytren damages hands, but
Happy 10th Anniversary Dupuytren Research Group!
The Dupuytren Research Group was founded ten years ago this month. Our original name was Dupuytren Foundation. Our original mission was simple: to advocate for Dupuytren patients. Providing patient education, physician education, connecting patients with patients, connecting patients with specialists, connecting surgeons with researchers, investigating alternative treatments, providing grants to researchers – these were
