Blog
Happy Halloween, Boo-puytren!
Happy Halloween from the Dupuytren Research Group!
Dupuytren Outreach Milestone
Dupuytren Research Group Outreach and Awareness programs have reached a new milestone: 1000 subscribers to Dupuytren.tv, the Dupuytren Research Group video podcast / YouTube channel. It’s actually a big deal: we don’t feature cats or dogs, cute babies, social media influencers, hot spokesmodels, “one weird trick” clickbait, video game reviews,
Podcast: Nine Dupuytren Questions
Here’s a fresh podcast reviewing the state of Dupuytren disease in 2019. In this podcast, Dr. Eaton of the Dupuytren Research Group reviews these 9 topics: What is Dupuytren Disease? Why do people develop it? What happens over time? How is it measured? How to prevent progression? How is it treated? Why is recurrence such a
It’s Dupuytren’s Birthday!
Happy Birthday, Dupuytren! It may not seem that long ago, but Guillaume Dupuytren was born just 242 years ago today on Oct. 5, 1777. Dupuytren disease goes by his name because of the lecture he gave and the surgery he performed for this condition at Hôpital-Dieu in Paris on the
Dupuytren Rare Champion of Hope Award
I just returned from the 2019 Global Genes Rare Advocacy Summit with the Rare Champion of Hope award in the category of science. It was one of the most exciting and inspirational meetings I’ve attended, filled with successful disease advocates, brilliant researchers, and leaders in genomic and advocacy technologies. What
Cabaret Fundraiser
Thanks to Ken Bernstein for organizing an upcoming event combining entertainment and Dupuytren research fundraising September in Nashville! Above, featured performers Jenny Littleton (R) and Jo Lynn Burks (L). Below, the press release for the show. Littleton, Burks, Logsdon Headline Showtune Mad Lib-Inspired Cabaret Fundraiser Producer Ken Bernstein is happy
Dupuytren Awareness
Promoting Dupuytren awareness is a cornerstone of making progress toward a Dupuytren cure. The Dupuytren Research Group has been promoting Dupuytren awareness to patients and physicians for the last 10 years through social media, online videos, academic journal articles and textbooks, scientific conferences, and public awareness seminars. We’ve had limited
The Need for Nonprofit Medical Research
Why isn’t there a drug for Dupuytren already? You might hear that surgeons don’t want a Dupuytren cure because it’s so profitable – but take it from a hand surgeon: if Dupuytren disappeared today, surgeons would be happier than patients: no one will miss Dupuytren. So why isn’t there a
DRG goes to Washington
On July 10th and 11th, the Dupuytren Research Group went to Washington DC. We visited offices of Congressional representatives and other organizations to raise awareness about the impact of Dupuytren disease and the need for federal funding of Dupuytren research. Right now, there are no federal funds directed specifically for
