Blog
IDDB, biomarkers and big data to cure Dupuytren disease
The International Dupuytren Data Bank (IDDB) will focus on Dupuytren biomarkers Why are biomarkers important for Dupuytren disease? Dupuytren contracture is an effect, not a cause. Think of fever. Fever is an effect of infection, drug reaction, or something else. Just treating the effect – the fever – doesn’t cure the cause.
GivingTuesday Deal for the Dupuytren Foundation
It has been a great year – thanks to you! We’ve launched the International Dupuytren Data Bank (IDDB) – research for a cure, to be the largest Dupuytren study in history. Now that the IDDB is underway, your support is more important than ever. Please consider increasing your year-end gift to
IDDB Research for a Cure: Enrollment is Open
Today is the day. The International Dupuytren Data Bank is now live. Independent. Crowdsourced. Massive. Free. The biggest Dupuytren research study ever. Enroll now at DupStudy.com Tell everyone with Dupuytren disease to enroll. DupStudy.com Together, we will find a cure.
Three types of Dupuytren disease?
It’s important to understand the difference between Dupuytren disease (any Dupuytren like changes in the hand – with or without contracture) and Dupuytren contracture (a bent finger due to Dupuytren like changes). An unsolved issue is variability of disease. It is not known what percent of people with early Dupuytren changes (a lump,
Raise Dupuytren Awareness: Eurordis photo contest
The best way to raise awareness of Dupuytren disease is to show people what it looks like. Here’s your chance to represent the Dupuytren community! http://www.eurordis.org/photo-contest
Options For Severe Dupuytren Recontracture 2/2
The three traditional treatments for severe recurrent Dupuytren contracture are PIP joint fusion, dermofasciectomy and amputation. These have been reviewed here. The list of alternative approaches is growing, particularly for the most difficult problem of PIP joint recontracture. The problem is that over time, the tendons and ligaments of a
Will Winford’s Dupuytren Challenge: Climbing El Capitán for a Cure
Dupuytren disease is a challenge. So is climbing straight up the side of a tall mountain with your bare hands. Today Will Winford, a 27 year old rock climber with Dupuytren disease, begins his conquest of both – climbing the 3000 vertical feet of El Capitán and using this to help raise
The Knowledge Gap
Dupuytren disease has fallen through a gap in a system which ordinarily leads to better and better disease treatment. One side of the gap is that at its core, Dupuytren disease is a medical disorder, from some subtle biologic imbalance. The other side is that although Dupuytren disease does many
Blue Eyes, Dupuytren Disease, and Alcoholism
A recent study linked blue eyes with genetic risk for alcoholism. Interesting, because Dupuytren disease is more common in people with light colored eyes and according to some studies, Dupuytren is linked to chronic alcoholism. It’s a match! Or is it? Other studies conclude alcoholism is not a risk for Dupuytren disease. Both Dupuytren and blue
