International Dupuytren Data Bank (IDDB) Research For a Dupuytren Cure
- The IDDB is a research project with a target of finding the cause and cure for Dupuytren Disease and related conditions. The IDDB is sponsored by the Dupuytren Research Group in partnership with the National Data Bank for Rheumatic Diseases. The IDDB is free for all participants around the world, and has three phases:
- Survey people with and without Dupuytren disease for clues about their biology. (Enroll and fill out follow-up progress surveys online)
- Collect blood samples from those surveyed.
(We’ll let you know how to do this.) - Compare survey results with DNA and other blood tests to develop prevention rather than procedures.
These are future plans and we will notify you when they are available.
You don’t have to have Dupuytren disease to enroll.
We need comparison data from people without Dupuytren disease. Also, people with Peyronie Disease, Ledderhose Disease, or Frozen Shoulder should enroll – whether or not they have Dupuytren disease.
Spread the word.
We need 10,000 people with Dupuytren disease and 1000 without Dupuytren disease to complete the survey and blood collection phases. The sooner we gather the information we need, the faster we can move toward a cure.
It’s simple.
Click on these icons to let others know how they can sign up.
This is a team effort – thank you for making this work possible!
