I just returned from the 2019 Global Genes Rare Advocacy Summit with the Rare Champion of Hope award in the category of science. It was one of the most exciting and inspirational meetings I’ve attended, filled with successful disease advocates, brilliant researchers, and leaders in genomic and advocacy technologies. What I learned there will change […]

Thanks to Ken Bernstein for organizing an upcoming event combining entertainment and Dupuytren research fundraising September in Nashville! Above, featured performers Jenny Littleton (R) and Jo Lynn Burks (L). Below, the press release for the show. Littleton, Burks, Logsdon Headline Showtune Mad Lib-Inspired Cabaret Fundraiser   Producer Ken Bernstein is happy to announce “Broadway Way Way…WAY […]

Promoting Dupuytren awareness is a cornerstone of making progress toward a Dupuytren cure. The Dupuytren Research Group has been promoting Dupuytren awareness to patients and physicians for the last 10 years through social media, online videos, academic journal articles and textbooks, scientific conferences, and public awareness seminars. We’ve had limited television exposure because our financial […]

Why isn’t there a drug for Dupuytren already? You might hear that surgeons don’t want a Dupuytren cure because it’s so profitable – but take it from a hand surgeon: if Dupuytren disappeared today, surgeons would be happier than patients: no one will miss Dupuytren. So why isn’t there a drug to slow down or […]

On July 10th and 11th, the Dupuytren Research Group went to Washington DC. We visited offices of Congressional representatives and other organizations to raise awareness about the impact of Dupuytren disease and the need for federal funding of Dupuytren research. Right now, there are no federal funds directed specifically for Dupuytren research – not at […]

Is Dupuytren disease common or rare? I recently attended the Rare Drug Development Symposium in Philadelphia. Why? Is Dupuytren really a rare disease? Yes and no. Mild Dupuytren is common but very severe Dupuytren is rare – in the same way that cats are common but chimeric cats with crazy colors are rare. What does […]

There are many reasons to know about Dupuytren disease. Ten of them are on your hands. When Healthgrades.com wanted to know more about Dupuytren disease, they reached out to the Dupuytren Research Group. See the Healthgrades Dupuytren review Dupuytren’s Contracture: 10 Things Doctors Want You to Know featuring Dupuytren specialists on the Dupuytren Research Group […]

Happy Rare Disease Day! Did you know that according to the US Government, Dupuytren is a rare disease? If you count everyone with any degree of Dupuytren disease, it’s fairly common. In the US alone, the number of Dupuytren sufferers projects to about 10 million people. But, if you ask the FDA, Dupuytren disease is a […]

Happy Valentine’s Day from the Dupuytren Research Group. We care about your hands. Your Hands Are Your Life.