Happy Thanksgiving from the Dupuytren Research Group!

The word “Dupuytren” is often missing from spellcheck libraries. Before my phone got used to me, it transcribed Dupuytren as “Jupiter Den”, “Two Bedrooms” “Do engine” and other comical substitutions, although it never produced “Department Contracture” or “Dumpster Contracture”, as in this newspaper article published last week: Dupuytren, Dupuytren, Dupuytren! It’s a common problem. We need […]

You’ve heard it: “Dupuytren is a ‘Viking disease’.” Is it? The answer begins in 1985. That year, surgeon John Hueston published his second textbook on Dupuytren disease. He wrote this on the first page of Chapter 6: That the Celtic immigration has spread this ‘Viking disease’ across the north of Europe, where the highest incidence […]

Susan Weiss OTR/L CHT just released the first of a 2-part audio podcast interview with Dupuytren Research Group’s Dr. Charles Eaton, discussing Dupuytren disease from a hand therapy perspective. Very interesting, can’t wait for the second installment!

Dupuytren Research Group Outreach and Awareness programs have reached a new milestone: 1000 subscribers to Dupuytren.tv, the Dupuytren Research Group video podcast / YouTube channel. It’s actually a big deal: we don’t feature cats or dogs, cute babies, social media influencers, hot spokesmodels, “one weird trick” clickbait, video game reviews, celebrities behaving badly, or other […]

Here’s a fresh podcast reviewing the state of Dupuytren disease in 2019. In this podcast, Dr. Eaton of the Dupuytren Research Group reviews these 9 topics: What is Dupuytren Disease? Why do people develop it? What happens over time? How is it measured? How to prevent progression? How is it treated? Why is recurrence such a problem? Why is it so different […]

Happy Birthday, Dupuytren! It may not seem that long ago, but Guillaume Dupuytren was born just 242 years ago today on Oct. 5, 1777. Dupuytren disease goes by his name because of the lecture he gave and the surgery he performed for this condition at Hôpital-Dieu in Paris on the 5th of December 1831, just […]

I just returned from the 2019 Global Genes Rare Advocacy Summit with the Rare Champion of Hope award in the category of science. It was one of the most exciting and inspirational meetings I’ve attended, filled with successful disease advocates, brilliant researchers, and leaders in genomic and advocacy technologies. What I learned there will change […]

Thanks to Ken Bernstein for organizing an upcoming event combining entertainment and Dupuytren research fundraising September in Nashville! Above, featured performers Jenny Littleton (R) and Jo Lynn Burks (L). Below, the press release for the show. Littleton, Burks, Logsdon Headline Showtune Mad Lib-Inspired Cabaret Fundraiser   Producer Ken Bernstein is happy to announce “Broadway Way Way…WAY […]