
The 2020 Zoom Discussion Group series has ended. We look forward to restarting this series in 2021!
Read more ›The 2020 Zoom Discussion Group series has ended. We look forward to restarting this series in 2021!
Read more ›Happy Birthday, Dupuytren! It may not seem that long ago, but Guillaume Dupuytren was born just 242 years ago today on Oct. 5, 1777. Dupuytren disease goes by his name because of the lecture he gave and the surgery he performed for this condition at Hôpital-Dieu in Paris on the 5th of December 1831, just […]
Read more ›I just returned from the 2019 Global Genes Rare Advocacy Summit with the Rare Champion of Hope award in the category of science. It was one of the most exciting and inspirational meetings I’ve attended, filled with successful disease advocates, brilliant researchers, and leaders in genomic and advocacy technologies. What I learned there will change […]
Read more ›There were a number of responses to the last blog post. Annie Stratton wrote something so insightful I’ve included it with permission at the end of this post. The last post used the analogy of war, the war on Dupuytren. That seemed reasonable for several reasons – the importance of strategy and tactics, the concept of […]
Read more ›Father’s Day is this weekend! Fathers pass on so many things to their children – wisdom, bad jokes, and sometimes Dupuytren disease. Over half of people with Dupuytren disease know a family member with Dupuytren. Dupuytren Celebrities This Father’s Day, these celebrities share their experiences with Dupuytren in their families. Joe Bonsall, country music legend […]
Read more ›Dupuytren Triggers Yes, that’s a picture of Roy Roger’s horse, Trigger. You might not have been expecting that. Dupuytren also shows up unexpectedly. People have normal hands, and then they don’t. Many feel the problem came out of nowhere. Others may recall some event happening around the same time as Dupuytren first appeared and conclude […]
Read more ›A recent study linked blue eyes with genetic risk for alcoholism. Interesting, because Dupuytren disease is more common in people with light colored eyes and according to some studies, Dupuytren is linked to chronic alcoholism. It’s a match! Or is it? Other studies conclude alcoholism is not a risk for Dupuytren disease. Both Dupuytren and blue eyes are more common in […]
Read more ›