The Dupuytren Research Group was founded ten years ago this month. Our original name was Dupuytren Foundation. Our original mission was simple: to advocate for Dupuytren patients. Providing patient education, physician education, connecting patients with patients, connecting patients with specialists, connecting surgeons with researchers, investigating alternative treatments, providing grants to researchers – these were good, but not enough. It was […]

Did You Know These Dupuytren Facts? Did you know? Today, each child of a parent with Dupuytren has a one in four chance of developing Dupuytren. Did you know? Today, there’s no practical way to test if a treatment can prevent Dupuytren. Did you know? Today’s approach to Dupuytren treatment is the same as it was in the 1800s: wait for a bend, […]

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Dupuytren and Fear of the Unknown Boopuytren! Here’s a common Dupuytren script. A person finds something unexplained in their palm. They see a hand surgeon, who tells them “You have Dupuytren disease.” “There’s nothing to do now.” “Come back when you can’t put your palm flat on a tabletop.” First, disappointment: the doctor did …nothing! (and […]

Dupuytren. In English, the word Dupuytren is unfamiliar. It’s hard to spell and strange to pronounce (DOO-pa-tren) – and not just for English speakers. In Denmark, it’s called Kuskefingre (Coachman’s finger) because Dupuytren’s first description involved the fingers of a man who drove a horsedrawn coach – a coachman. The reason that the word isn’t […]

I had a recent correspondence with someone who wanted to discuss the off-label use of Anakinra, an IL1RAP blocker, for her early Dupuytren disease because it had worked so well (off-label) for a problem she had similar to frozen shoulder. It turns out, there are a few small reports of favorable responses to this drug […]

Father’s Day is this weekend! Fathers pass on so many things to their children – wisdom, bad jokes, and sometimes Dupuytren disease. Over half of people with Dupuytren disease know a family member with Dupuytren. Dupuytren Celebrities  This Father’s Day, these celebrities share their experiences with Dupuytren in their families. Joe Bonsall, country music legend […]

So much is known about Dupuytren; much more needs to be known. Dupuytren probably isn’t one single diagnosis or one single disease. It’s the end result of overlapping causes. It’s a late effect of many possible causes, the same way similar looking scars can be the late effects of different injuries – cuts, burns, blunt trauma and […]

May is here. Summer is coming! In many countries, Mother’s day is being celebrated this Sunday. It’s a meaningful milestone. Dupuytren Research Group is also marking milestones – on a variety of maps. International Dupuytren Data Bank Enrollment The IDDB is nearing the 3000 enrollee mark: as of today, we have 2996 enrollees. Here is […]