Dupuytren in the Family: What are the Odds?
Dupuytren disease is genetic. It runs in families – but how? It depends on ancestry, age, gender, and relatives. Not everyone with Dupuytren has bent fingers. Dupuytren disease is any Dupuytren changes of the palms. Nodules, puckered skin, or cords are all signs of Dupuytren disease. Dupuytren contracture is Dupuytren disease plus bent fingers. The graphic […]
Happy Birthday, Dupuytren, and Thanks for the Name!
Happy Dupuytren Day! Guillaume Dupuytren, the famous surgeon, was born on 5 October 1777. He would have been 246 years old today. If he were alive now, there’s a good chance he’d have the disease named after himself. Why is it called Dupuytren disease or Dupuytren contracture? Most medical disorders are named in one of […]
Disease Modifying AntiDupuytren Drugs
The path to a Dupuytren cure is connected to the story of drugs for rheumatoid arthritis. The evolution of rheumatoid drug treatment dates back centuries, based on guesswork and trial and error. During this time, hundreds of rheumatoid “cures” were recommended – herbs, diets, bedrest, baths, special clothing, radioactive exposure, special jewelry, injections of arsenic […]
Happy Holidays from DRG
When we all lend a hand helping the community we improve everyone’s quality of life. Best wishes in this holiday season from the Dupuytren Research Group
Podcast: Nine Dupuytren Questions
Here’s a fresh podcast reviewing the state of Dupuytren disease in 2019. In this podcast, Dr. Eaton of the Dupuytren Research Group reviews these 9 topics: What is Dupuytren Disease? Why do people develop it? What happens over time? How is it measured? How to prevent progression? How is it treated? Why is recurrence such a problem? Why is it so different […]
Dupuytren Rare Champion of Hope Award
I just returned from the 2019 Global Genes Rare Advocacy Summit with the Rare Champion of Hope award in the category of science. It was one of the most exciting and inspirational meetings I’ve attended, filled with successful disease advocates, brilliant researchers, and leaders in genomic and advocacy technologies. What I learned there will change […]
DRG goes to Washington
On July 10th and 11th, the Dupuytren Research Group went to Washington DC. We visited offices of Congressional representatives and other organizations to raise awareness about the impact of Dupuytren disease and the need for federal funding of Dupuytren research. Right now, there are no federal funds directed specifically for Dupuytren research – not at […]
Grants.gov: $0 for Dupuytren Research
Currently, there are no government grants for Dupuytren research. See for yourself: [ale_button url=”https://www.grants.gov/web/grants/search-grants.html?keywords=Dupuytren” style=”light-blue” size=”small” type=”round” target=”_blank”]Search Grants.gov for Dupuytren Research Funding[/ale_button] We’re working to change this. You should, too. If you have an idea you want to work on to help jumpstart government funding for Dupuytren Research, let us know! [ale_button url=”https://dupuytrens.org/contact-the-dupuytren-foundation/” style=”light-blue” […]
Dupuytren: restoring balance vs. winning the war
There were a number of responses to the last blog post. Annie Stratton wrote something so insightful I’ve included it with permission at the end of this post. The last post used the analogy of war, the war on Dupuytren. That seemed reasonable for several reasons – the importance of strategy and tactics, the concept of […]
PrecisionFDA Dupuytren Blog
PrecisionFDA Dupuytren Blog PrecisionFDA https://precision.fda.gov/ is a US Government initiative designed to support cutting-edge genomic research and help researchers collaborate across the globe. As a member of PrecisionFDA, Dupuytren Research Group will use PrecisionFDA cloud hosting to allow authorized researchers around the world to collaborate and analyze data from the International Dupuytren Data Bank (IDDB). Data […]
