Survey Results: Dupuytren Triggers
The December 2017 Sixty Second Survey on Dupuytren Triggers was the most data-packed survey to date. This survey focused on a simple-sounding question: is the onset of Dupuytren disease triggered by an external event such as injury, physical activity, medication, or emotional stress? Almost 40 percent of those taking the survey believed that some event […]
Dupuytren Matching Gift Challenge
Compassion, Generosity, and Enlightened Self-Interest In this season of gratitude and self-reflection, it’s wonderful to have a simple way to help oneself and at the same time help others in the same situation. I have Dupuytren disease in my hand. I’ve learned that Dupuytren-related diseases run in my family, here and there: Dupuytren, Ledderhose, Peyronie, […]
Dupuytren Triggers: 60 second survey
Dupuytren Triggers Yes, that’s a picture of Roy Roger’s horse, Trigger. You might not have been expecting that. Dupuytren also shows up unexpectedly. People have normal hands, and then they don’t. Many feel the problem came out of nowhere. Others may recall some event happening around the same time as Dupuytren first appeared and conclude […]
What is Dupuytren Disease?
What is Dupuytren disease? After passing the first hurdle of pronouncing Dupuytren (DOOpa-tren: sort of rhymes with “hooka den”, “group of friends” “move again” “super bend”…), most people – doctors and patients alike – have trouble answering this question. Most doctors don’t give a simple answer. Instead, they often just describe some part of the problem. […]
Dupuytren and nerve problems?
Does Dupuytren cause nerve problems? A common topic of discussion on Dupuytren forums such The Dupuytren’s Disease Support Group [ale_button url=”https://www.dupuytrensdiseasesupportgroup.com/” style=”light-blue” size=”small” type=”round” target=”_blank”] DDSG [/ale_button] is whether or not Dupuytren causes numbness and tingling in the hands and arms. As with everything Dupuytren related, the answer is …it depends. A few small studies […]
The Future is Coming!
Improving the Future of Dupuytren Care Right now, many people with mild Dupuytren biology do well after surgery or after Xiaflex – because most people have mild to moderate Dupuytren biology. The issue isn’t the patient with mild disease biology who will do well for a long time after any treatment. The issue is those […]
Media coverage of Dupuytren Disease
There’s a been recent storm of Dupuytren related media coverage: A television news story interviewing Dupuytren Foundation executive director Dr. Charles Eaton and Dupuytren Foundation board member Tom Knapp: http://www.wpbf.com/news/whats-brewing-with-stephanie-berzinski-dupuytren-disease/39025076 Google books chose the chapter on Dupuytren disease authored by Dr. Charles Eaton to be the online example for the latest edition of the classic […]
Dupuytren Heroes Raising Dupuytren Awareness
Dupuytren disease advocacy faces many small challenges which collectively add up to a big challenge. Even the French word Dupuytren (“Doop-a-tren”) isn’t familiar to English speakers either in sound or spelling. It doesn’t even rhyme with any English word. The result is that the word Dupuytren is hard to remember, and often doesn’t register when people see […]
Speeding up Dupuytren research
A hand surgery colleague just sent me hand pictures of a patient he had treated with needle aponeurotomy seven years ago. His patient recently had a recurrence and had an excellent outcome with repeat needle aponeurotomy. A great result, more impressive because things don’t always go as well. It’s an example of the ups and downs […]
First Dupuytren Nodule
My first Dupuytren palm nodule. What will to happen to me? Most Dupuytren disease starts as a nodule. Some nodules go away without any treatment. Some nodules develop minor cords and then seem to stop. Some nodules are the first sign of severe Dupuytren disease. Which is it going to be? Without a biomarker, we can […]
