General

Better to be lucky than smart?

Thirteen years ago, a doctor had bad Dupuytren contractures. He had been told that he needed surgery if he wanted to straighten his fingers. He didn’t want to take time off his practice for what might be a lengthy recovery after traditional surgery. He found a hand surgeon who was doing needle aponeurotomy – which had […]

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How common is Dupuytren Disease?
On: Apr 1, 2017
By: Charles Eaton

How common is Dupuytren disease? The short answer is this:  much more common than you might think. Scroll to the bottom to get the summary numbers. For the long answer, keep reading. The details depend on where you get your data. One set of data comes from a large web-based survey (DiBenedetti 2010). One conclusion […]

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Dupuytren Disease Awareness Day!
On: Mar 20, 2017
By: Charles Eaton

Dupuytren Awareness Dupuytren disease research has a big problem: lack of awareness. Most people have never heard the word “Dupuytren”, much less “Dupuytren Disease”. The name “Dupuytren” is hard to pronounce and even harder to spell. Many other medical conditions have had this problem. Most have still not made it out into public. It takes work, […]

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Cannabinoids, Dupuytren, and Orphan Drugs
On: Mar 3, 2017
By: Charles Eaton

I was recently asked if medical marijuana might be helpful for Dupuytren disease. The short answer is “No one knows.”. The longer answer is much more interesting. The late effect of Dupuytren disease is Dupuytren contracture. The medical term for the findings in Dupuytren contracture is fibrosis. Sclerosis also means the same thing. If either of […]

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Heads and Hands: Biomarkers
On: Jan 9, 2017
By: Charles Eaton

Heads and Hands: Biomarkers Biomarkers are the focus of Dupuytren Research Group research – the International Dupuytren Data Bank. Researchers in many medical specialties are searching for biomarkers, not just to find new treatments, but as a guide to current treatment. Blood test biomarkers are under investigation for better management and eventually prevention of  post-concussive […]

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The Future is Coming!

Improving the Future of Dupuytren Care Right now, many people with mild Dupuytren biology do well after surgery or after Xiaflex – because most people have mild to moderate Dupuytren biology. The issue isn’t the patient with mild disease biology who will do well for a long time after any treatment. The issue is those […]

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Happy Holidays from the Dupuytren Foundation
On: Dec 19, 2016
By: Charles Eaton

We have a lot to be grateful for right now, including something that’s a pretty big deal. The most advanced Dupuytren research ever has moved from dream to reality – the International Dupuytren Data Bank. It is a big deal. Dupuytren disease is overlooked. Dupuytren patients are underserved. Dupuytren isn’t a common word, but it’s […]

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Happy Thanksgiving from the Dupuytren Foundation!

Turkey Day Update! Much has happened since the last Dupuytren Foundation report in July. The International Dupuytren Data Bank (IDDB) averages 100 new enrollees each month. We’re continuing to work out the complicated details of blood testing. If you haven’t enrolled yet, now is the time: http://DupStudy.com. Our international research committee continues to grow. So does […]

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Crowdsourcing for a Cure
On: Sep 16, 2016
By: Charles Eaton

Crowdsourcing Support for International Dupuytren Data Bank Research I’m excited to announce the work of Eric Forman, a Dupuytren / Ledderhose disease advocate. Eric is orchestrating Find The Cure, an online campaign to support IDDB research for a cure. If you have Dupuytren, Ledderhose or Peyronie disease, you understand the need for a cure. Find The […]

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Dupuytren’s Disease Support Group Q&A
On: Sep 2, 2016
By: Charles Eaton

Dupuytren disease research questions and answers. Dupuytren advocacy is challenging. One challenge is that many people have never heard the words Dupuytren, or Ledderhose, or Peyronie, including many who have these problems. A larger challenge is that no one knows the root biology of Dupuytren/Ledderhose/Peyronie disease – how it starts, or how to make it […]

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