Contact

Blog

A better Dupuytren measurement?

Measuring Dupuytren What’s the best way to measure Dupuytren disease impact? Finger angles? Dexterity performing hand-related activities? Subjective or self-reported surveys? It turns out that Dupuytren is difficult to pigeonhole. People often compensate for some loss of motion without being aware that they are. Unless the fingers are really bent,

Read More »

The Importance of Dupuytren Stories

The story depends on the storyteller. For nearly two centuries, the only narrators of the story of Dupuytren have been doctors and therapists. The public face of Dupuytren was limited either to what was easy to describe (measuring finger angles) or to technical details relevant to surgery. It was a

Read More »

Happy Birthday, Dupuytren!

Today Would Have Been Dupuytren’s Birthday Guillaume Dupuytren (10/5/1777 – 2/8/1835) was born on this day in Pierre-Buffières, France. He excelled in anatomic studies and was appointed assistant surgeon at the Hôtel-Dieu in Paris at the age of 26. He rose to the position of head surgeon at the Hôtel-Dieu

Read More »

Women with Dupuytren disease

Women with Dupuytren Disease A traditional Dupuytren narrative is that Dupuytren is primarily a painless nuisance problem of bent fingers in old men. This perception does a disservice to many. Not only is Dupuytren common in women, it may also present a unique burden to women. Updating the traditional narrative

Read More »

Share Your Dupuytren Story

Dupuytren. In English, the word Dupuytren is unfamiliar. It’s hard to spell and strange to pronounce (DOO-pa-tren) – and not just for English speakers. In Denmark, it’s called Kuskefingre (Coachman’s finger) because Dupuytren’s first description involved the fingers of a man who drove a horsedrawn coach – a coachman. The

Read More »

Citizen-Scientists for Dupuytren Research

I had a recent correspondence with someone who wanted to discuss the off-label use of Anakinra, an IL1RAP blocker, for her early Dupuytren disease because it had worked so well (off-label) for a problem she had similar to frozen shoulder. It turns out, there are a few small reports of

Read More »

2018 Father’s Day

Father’s Day is this weekend! Fathers pass on so many things to their children – wisdom, bad jokes, and sometimes Dupuytren disease. Over half of people with Dupuytren disease know a family member with Dupuytren. Dupuytren Celebrities  This Father’s Day, these celebrities share their experiences with Dupuytren in their families.

Read More »

One Dup, Two Dup, Red Dup, Blue Dup

So much is known about Dupuytren; much more needs to be known. Dupuytren probably isn’t one single diagnosis or one single disease. It’s the end result of overlapping causes. It’s a late effect of many possible causes, the same way similar looking scars can be the late effects of different injuries –

Read More »

Mother’s Day Maps

May is here. Summer is coming! In many countries, Mother’s day is being celebrated this Sunday. It’s a meaningful milestone. Dupuytren Research Group is also marking milestones – on a variety of maps. International Dupuytren Data Bank Enrollment The IDDB is nearing the 3000 enrollee mark: as of today, we

Read More »