The Future is Coming!
Improving the Future of Dupuytren Care Right now, many people with mild Dupuytren biology do well after surgery or after Xiaflex – because most people have mild to moderate Dupuytren biology. The issue isn’t the patient with mild disease biology who will do well for a long time after any treatment. The issue is those […]
Pronounce Dupuytren
My phone’s speech recognition has transcribed Dupuytren as “two bedrooms”, “do patron”, “Jupiter den” and others, but the best was a couple of days ago: “Stupid trend“. Pretty close – and appropriate, don’t you think?
Media coverage of Dupuytren Disease
There’s a been recent storm of Dupuytren related media coverage: A television news story interviewing Dupuytren Foundation executive director Dr. Charles Eaton and Dupuytren Foundation board member Tom Knapp: http://www.wpbf.com/news/whats-brewing-with-stephanie-berzinski-dupuytren-disease/39025076 Google books chose the chapter on Dupuytren disease authored by Dr. Charles Eaton to be the online example for the latest edition of the classic […]
Dupuytren Heroes Raising Dupuytren Awareness
Dupuytren disease advocacy faces many small challenges which collectively add up to a big challenge. Even the French word Dupuytren (“Doop-a-tren”) isn’t familiar to English speakers either in sound or spelling. It doesn’t even rhyme with any English word. The result is that the word Dupuytren is hard to remember, and often doesn’t register when people see […]
Speeding up Dupuytren research
A hand surgery colleague just sent me hand pictures of a patient he had treated with needle aponeurotomy seven years ago. His patient recently had a recurrence and had an excellent outcome with repeat needle aponeurotomy. A great result, more impressive because things don’t always go as well. It’s an example of the ups and downs […]
Dupuytren Pain and Itching
Pain with Dupuytren disease receives little attention. This is a hot button topic. Many Dupuytren patients feel marginalized when they hear a doctor say that Dupuytren disease doesn’t hurt – because theirs does. Dupuytren disease can be very painful – but the majority of Dupuytren patients have no pain, and the reason for this is […]
First Dupuytren Nodule
My first Dupuytren palm nodule. What will to happen to me? Most Dupuytren disease starts as a nodule. Some nodules go away without any treatment. Some nodules develop minor cords and then seem to stop. Some nodules are the first sign of severe Dupuytren disease. Which is it going to be? Without a biomarker, we can […]
Dupuytren Contracture Procedure Choices
If a hand progresses from early Dupuytren disease (nodules, dimples, cords with no limitation of motion) to Dupuytren contracture, treatment should be considered. The best compromise between the ordeal of a procedure and the best long term outcome is to treat either when the finger is either awkwardly bent or if the bend of one joint […]
IDDB, biomarkers and big data to cure Dupuytren disease
The International Dupuytren Data Bank (IDDB) will focus on Dupuytren biomarkers Why are biomarkers important for Dupuytren disease? Dupuytren contracture is an effect, not a cause. Think of fever. Fever is an effect of infection, drug reaction, or something else. Just treating the effect – the fever – doesn’t cure the cause. You have to find […]
GivingTuesday Deal for the Dupuytren Foundation
It has been a great year – thanks to you! We’ve launched the International Dupuytren Data Bank (IDDB) – research for a cure, to be the largest Dupuytren study in history. Now that the IDDB is underway, your support is more important than ever. Please consider increasing your year-end gift to the Dupuytren Foundation this year […]
