Dupuytren: restoring balance vs. winning the war
There were a number of responses to the last blog post. Annie Stratton wrote something so insightful I’ve included it with permission at the end of this post. The last post used the analogy of war, the war on Dupuytren. That seemed reasonable for several reasons – the importance of strategy and tactics, the concept of […]
Strategies and Tactics of Dupuytren Treatment: Measurement
This is the introduction to an upcoming series of discussions on the science behind new potential preventive Dupuytren treatments. The guiding mission of the Dupuytren Research Group is to do what needs to be done to prevent and stop Dupuytren. Our goal is the conquest of Dupuytren. Dupuytren damages hands, but the main effort of the […]
PrecisionFDA Dupuytren Blog
PrecisionFDA Dupuytren Blog PrecisionFDA https://precision.fda.gov/ is a US Government initiative designed to support cutting-edge genomic research and help researchers collaborate across the globe. As a member of PrecisionFDA, Dupuytren Research Group will use PrecisionFDA cloud hosting to allow authorized researchers around the world to collaborate and analyze data from the International Dupuytren Data Bank (IDDB). Data […]
Did You Know These Dupuytren Facts?
Did You Know These Dupuytren Facts? Did you know? Today, each child of a parent with Dupuytren has a one in four chance of developing Dupuytren. Did you know? Today, there’s no practical way to test if a treatment can prevent Dupuytren. Did you know? Today’s approach to Dupuytren treatment is the same as it was in the 1800s: wait for a bend, […]
Dupuytren and Fear of the Unknown
Dupuytren and Fear of the Unknown Boopuytren! Here’s a common Dupuytren script. A person finds something unexplained in their palm. They see a hand surgeon, who tells them “You have Dupuytren disease.” “There’s nothing to do now.” “Come back when you can’t put your palm flat on a tabletop.” First, disappointment: the doctor did …nothing! (and […]
The Importance of Dupuytren Stories
The story depends on the storyteller. For nearly two centuries, the only narrators of the story of Dupuytren have been doctors and therapists. The public face of Dupuytren was limited either to what was easy to describe (measuring finger angles) or to technical details relevant to surgery. It was a narrow tunnel vision about what […]
Mother’s Day Maps
May is here. Summer is coming! In many countries, Mother’s day is being celebrated this Sunday. It’s a meaningful milestone. Dupuytren Research Group is also marking milestones – on a variety of maps. International Dupuytren Data Bank Enrollment The IDDB is nearing the 3000 enrollee mark: as of today, we have 2996 enrollees. Here is […]
Dupuytren Triggers: 60 second survey
Dupuytren Triggers Yes, that’s a picture of Roy Roger’s horse, Trigger. You might not have been expecting that. Dupuytren also shows up unexpectedly. People have normal hands, and then they don’t. Many feel the problem came out of nowhere. Others may recall some event happening around the same time as Dupuytren first appeared and conclude […]
The Future is Coming!
Improving the Future of Dupuytren Care Right now, many people with mild Dupuytren biology do well after surgery or after Xiaflex – because most people have mild to moderate Dupuytren biology. The issue isn’t the patient with mild disease biology who will do well for a long time after any treatment. The issue is those […]
Speeding up Dupuytren research
A hand surgery colleague just sent me hand pictures of a patient he had treated with needle aponeurotomy seven years ago. His patient recently had a recurrence and had an excellent outcome with repeat needle aponeurotomy. A great result, more impressive because things don’t always go as well. It’s an example of the ups and downs […]
