Running For Dupuytren Research
Running. 100 Miles. Uphill. In the Summer. At 12,000 Feet. Daniel Kinek is an ultramarathon runner. He will run the Leadville 100-mile trail race on August 17, 2024, to raise awareness about Dupuytren Disease. Daniel doesn’t have Dupuytren, but his family does. He will be running a difficult 100 miles in less than 36 hours. […]
August is National Make a Will month
Here at the Dupuytren Research Group, we’re planning for the future. Dupuytren spans generations. Our work centers on families. That’s why it’s the perfect time to be reminded that August is National Make a Will Month. Wills are essential regardless of wealth. They are about you – protecting your loved ones, avoiding family feuds, and preventing the government’s […]
Register Now: International Dupuytren Symposium!
Geared for healthcare professionals, but anyone may participate! https://DupuytrenSymposium.org
Dupuytren Outreach Milestone
Dupuytren Research Group Outreach and Awareness programs have reached a new milestone: 1000 subscribers to Dupuytren.tv, the Dupuytren Research Group video podcast / YouTube channel. It’s actually a big deal: we don’t feature cats or dogs, cute babies, social media influencers, hot spokesmodels, “one weird trick” clickbait, video game reviews, celebrities behaving badly, or other […]
Grants.gov: $0 for Dupuytren Research
Currently, there are no government grants for Dupuytren research. See for yourself: [ale_button url=”https://www.grants.gov/web/grants/search-grants.html?keywords=Dupuytren” style=”light-blue” size=”small” type=”round” target=”_blank”]Search Grants.gov for Dupuytren Research Funding[/ale_button] We’re working to change this. You should, too. If you have an idea you want to work on to help jumpstart government funding for Dupuytren Research, let us know! [ale_button url=”https://dupuytrens.org/contact-the-dupuytren-foundation/” style=”light-blue” […]
The Importance of Dupuytren Stories
The story depends on the storyteller. For nearly two centuries, the only narrators of the story of Dupuytren have been doctors and therapists. The public face of Dupuytren was limited either to what was easy to describe (measuring finger angles) or to technical details relevant to surgery. It was a narrow tunnel vision about what […]
Dupuytren Matching Gift Challenge
Compassion, Generosity, and Enlightened Self-Interest In this season of gratitude and self-reflection, it’s wonderful to have a simple way to help oneself and at the same time help others in the same situation. I have Dupuytren disease in my hand. I’ve learned that Dupuytren-related diseases run in my family, here and there: Dupuytren, Ledderhose, Peyronie, […]
The Future is Coming!
Improving the Future of Dupuytren Care Right now, many people with mild Dupuytren biology do well after surgery or after Xiaflex – because most people have mild to moderate Dupuytren biology. The issue isn’t the patient with mild disease biology who will do well for a long time after any treatment. The issue is those […]
Dupuytren Heroes Raising Dupuytren Awareness
Dupuytren disease advocacy faces many small challenges which collectively add up to a big challenge. Even the French word Dupuytren (“Doop-a-tren”) isn’t familiar to English speakers either in sound or spelling. It doesn’t even rhyme with any English word. The result is that the word Dupuytren is hard to remember, and often doesn’t register when people see […]
Speeding up Dupuytren research
A hand surgery colleague just sent me hand pictures of a patient he had treated with needle aponeurotomy seven years ago. His patient recently had a recurrence and had an excellent outcome with repeat needle aponeurotomy. A great result, more impressive because things don’t always go as well. It’s an example of the ups and downs […]
